Sökresultat - "орфанные заболевания"

Quality of life of patients with different forms of hemophilia on the example of Nizhny Novgorod region

D. S. Fokina, O. V. Zhukova, S. A. Volkova, A. L. Khokhlov

electronic resource

Visa; Visa; Visa

Economic analysis of the use of drugs for the treatment of hemophilia A, B and Willebrand's disease

D. S. Fokina, O. V. Zhukova, A. L. Khokhlov, S. A. Volkova

electronic resource

Visa; Visa; Visa

РЕДКИЕ (ОРФАННЫЕ) ЗАБОЛЕВАНИЯ: СОЦИАЛЬНО-ПРАВОВОЙ АСПЕКТ

Вера Сергеевна Зубкова, Ирина Ивановна Игнатовская, Марине Геворговна Могробян

electronic resource

Visa; Visa; Visa

Lysosomal lipid storage diseases in children. Modern diagnostic and treatment methods

I. N. Zakharova, А. N. Goryaynova, I. D. Maikova, N. V. Koroid, L. P. Katasonova, O. I. Elfimova, N. E. Kuzina, E. A. Dikova

electronic resource

Visa; Visa; Visa

THE STUDY OF THE STRUCTURE OF REGIONAL SEGMENTS OF THE FEDERAL REGISTER OF PERSONS SUFFERING FROM CHRONIC AND PROGRESSIVE ŽIZNEUGROŽAÛŜIMI OF RARE (ORPHAN) DISEASES

R. I. Agudina, N. V. Kosakova, N. I. Gavrilina

electronic resource

Visa; Visa; Visa

Socio-economic and regional aspects of pharmaceutical care to patients with rare diseases in the Omsk region

V E Atavin, E E Loskutova, M M Kurashov, L V Shukil’

electronic resource

Visa; Visa; Visa

Threat to life as a predictor of the choice of coping strategies, the level of adherence to treatment and quality of life in adult patients with cystic fibrosis

Илья Николаевич Абросимов

electronic resource

Visa; Visa; Visa