haemophilia b, specialist nurses, factor ix, long-acting clotting factor, ehl fix, Diseases of the blood and blood-forming organs, RC633-647.5

Some clinicians believe that haemophilia B is associated with less bleeding than haemophilia A, yet there appears to be little difference in health-related outcomes. Current clinical practice reduces the risk of bleeds, making differences difficult to measure. We surveyed specialist haemophilia nurses to discern their opinions about the impact of haemophilia B compared to haemophilia A.